Interviews and focus groups were conducted to consult patients on how they feel about their care, key challenges they face, and suggestions for care plan improvements. The purpose of these discussions was to understand the participants’ impressions of the proposed care plan for transition from paediatric to adult CHD care and ongoing CHD care. ​Recruitment is now complete for this project, and analysis of the findings is underway.

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Initial findings have been published on barriers and facilitators of transition to adult care1, and the pyschosocial impacts of living with congenital heart disase2.

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​​​References:​

1. Ruban S, Lloyd L, Badal T, Strange G, Celermajer DS, Bonner C. Understanding barriers and facilitators of transition to adult care among adolescents with Congenital Heart Disease (CHD): A qualitative study of adult perspectives. Patient Educ Couns. 2025;142:109364.

2. Lloyd L, Ruban S, Badal T, Strange G, Celermajer DS, Bonner C. Living with congenital heart disease: a qualitative study to explore psychosocial impacts in adulthood. International Journal of Cardiology Congenital Heart Disease. 2025:100610.

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