Interviews and focus groups were conducted to gather patient perspectives on their care, including their experiences, key challenges, and suggestions for improvement. These discussions aimed to better understand the lived experiences of people with congenital heart disease (CHD) and to support the co-design of a care plan, including transition from paediatric to adult CHD services and ongoing adult CHD care. Recruitment for the project is now complete, and analysis of the findings is underway.

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Initial findings have been published on barriers and facilitators of transition to adult care1, and the pyschosocial impacts of living with congenital heart disase2.

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​​​References:​

1. Ruban S, Lloyd L, Badal T, Strange G, Celermajer DS, Bonner C. Understanding barriers and facilitators of transition to adult care among adolescents with Congenital Heart Disease (CHD): A qualitative study of adult perspectives. Patient Educ Couns. 2025;142:109364.

2. Lloyd L, Ruban S, Badal T, Strange G, Celermajer DS, Bonner C. Living with congenital heart disease: a qualitative study to explore psychosocial impacts in adulthood. International Journal of Cardiology Congenital Heart Disease. 2025:100610.

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