National Congenital Heart Disease Survey
The survey is now closed and the results have been published in Heart Lung Circulation. For more information on the results of this project follow the link.
Welcome to the website of the Congenital Heart Alliance of Australia and New Zealand (CHAANZ).
CHAANZ is a consortium of congenital heart disease researchers from Australia and New Zealand. Their purpose is to facilitate focused research in congenital heart disease, promote the need for greater resources and assist with services for all people with congenital heart disease.
Australian-wide study of the outcomes and burden of congenital heart disease across the life-course
In July 2020, funding was awarded to CHAANZ from the Medical Research Future Fund Grants for Congenital Heart Disease. This project aims to understand the burdens and outcomes of congenital heart disease.
The National Congenital Heart Disease survey is now closed and the results have been published in Heart Lung Circulation. Thank you to everyone who participated in this important study. You can read more about the results here.
ANZ Congenital Heart Disease Registry
The National Congenital Heart Disease survey is the first step towards addressing current research questions and developing solutions to help all patients with congenital heart disease, irrespective of where they sit on the disease continuum.
Outcomes & Burdens for CHD
In addition to providing increased resources for the development of the ANZ Congenital Heart Disease Registry, the MRFF funding will also allow CHAANZ to expand its research in to the burdens and outcomes of congenital heart disease.
National CHD Survey
The National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease.
ANZ Epidemiology Research
Epidemiology research in congenital heart disease is currently underway in New Zealand and Queensland. Both studies are investigating the burden of disease in each region. More information on these studies can be found here.
A call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper.