Bienvenido
Bienvenido al sitio web de Congenital Heart Alliance de Australia y Nueva Zelanda (CHAANZ).
CHAANZ es un consorcio de investigadores de enfermedades cardíacas congénitas de Australia y Nueva Zelanda. Su propósito es facilitar la investigación enfocada en enfermedades cardíacas congénitas, promover la necesidad de mayores recursos y ayudar con servicios para todas las personas con enfermedades cardíacas congénitas.
In the News
The ANZ CHD Registry was recently featured on Channel 9 News. Professor David Celermajer AO, has led the development of the ANZ CHD Registry and Clarissa Pitisikas, Head of Donor Services at HRI and one of Professor Celermajer's patients, spoke to 9News Health Reporter Gabriela Rogers.
Estudio a nivel australiano sobre los resultados y la carga de las cardiopatías congénitas a lo largo de la vida
En julio de 2020, se otorgó fondos a CHAANZ de las subvenciones del Fondo de Futuro de Investigación Médica para Enfermedades Congénitas del Corazón. Este proyecto tiene como objetivo comprender las cargas y los resultados de las cardiopatías congénitas.
Aotearoa New Zealand
The Paediatric and Congenital Cardiac Service based at Starship/Auckland City Hospitals is very pleased to contribute to the CHAANZ Registry collaboration and grateful for the support and endorsement of Heart Kids New Zealand for this project.
At this time, it is only possible to enrol and contribute data from patients from Aotearoa New Zealand who have received inpatient or outpatient care in Te Toka Tumai Auckland (Starship, Greenlane and Auckland Hospitals).
Nuestra investigación
 Patient Engagement StudyInterviews and focus groups are underway to consult patients on how they feel about their care, key challenges they face, and suggestions for care plan improvements. The purpose of these discussions will be to understand the participants’ impressions of the proposed care plan for transition from paediatric to adult CHD care and ongoing CHD care. |  ANZ Congenital Heart Disease RegistryThe National Congenital Heart Disease survey is the first step towards addressing current research questions and developing solutions to help all patients with congenital heart disease, irrespective of where they sit on the disease continuum. |  Outcomes & Burdens for CHDIn addition to providing increased resources for the development of the ANZ Congenital Heart Disease Registry, the MRFF funding will also allow CHAANZ to expand its research in to the burdens and outcomes of congenital heart disease. Recruitment is now complete. |  National CHD SurveyThe National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease. |
|---|---|---|---|
 Developing the ANZ CHD RegistryDeveloping and optimising the ANZ CHD Registry has been an involved process. Read about some of our published work here. |  Our ResearchA call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper. |