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Encuesta nacional sobre enfermedades cardíacas congénitas

La encuesta ya está cerrada y los resultados se han publicado en Heart Lung Circulation. Para obtener más información sobre los resultados de este proyecto, siga el enlace.

Bienvenido

Bienvenido al sitio web de Congenital Heart Alliance de Australia y Nueva Zelanda (CHAANZ).

CHAANZ es un consorcio de investigadores de enfermedades cardíacas congénitas de Australia y Nueva Zelanda. Su propósito es facilitar la investigación enfocada en enfermedades cardíacas congénitas, promover la necesidad de mayores recursos y ayudar con servicios para todas las personas con enfermedades cardíacas congénitas.

Estudio a nivel australiano sobre los resultados y la carga de las cardiopatías congénitas a lo largo de la vida

En julio de 2020, se otorgó fondos a CHAANZ de las subvenciones del Fondo de Futuro de Investigación Médica para Enfermedades Congénitas del Corazón. Este proyecto tiene como objetivo comprender las cargas y los resultados de las cardiopatías congénitas.

DataCamp Donates x HeartKids Australia Partnership

HeartKids Australia has entered a partnership with DataCamp Donates, an initiative providing free data science training to members of disadvantaged communities, students, and non-profit research scientists. The CHAANZ team is using this opportunity to upskill, taking courses in data science, including artificial intelligence, machine learning, statistics, and programming.

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Nuestra investigación

Survey Results

Survey Results

The National Congenital Heart Disease survey is now closed and the results have been published in Heart Lung Circulation. Thank you to everyone who participated in this important study. You can read more about the results here.

ANZ Congenital Heart Disease Registry

ANZ Congenital Heart Disease Registry

The National Congenital Heart Disease survey is the first step towards addressing current research questions and developing solutions to help all patients with congenital heart disease, irrespective of where they sit on the disease continuum.

Outcomes & Burdens for CHD

Outcomes & Burdens for CHD

In addition to providing increased resources for the development of the ANZ Congenital Heart Disease Registry, the MRFF funding will also allow CHAANZ to expand its research in to the burdens and outcomes of congenital heart disease.

National CHD Survey

National CHD Survey

The National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease.

ANZ Epidemiology Research

ANZ Epidemiology Research

Epidemiology research in congenital heart disease is currently underway in New Zealand and Queensland. Both studies are investigating the burden of disease in each region. More information on these studies can be found here.

Our Research

Our Research

A call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper.

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