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Pambansang Survey sa Sakit sa Sakit sa Bata

Ang survey ay sarado na at ang mga resulta ay nai-publish sa Heart Lung Circulation. Para sa karagdagang impormasyon sa mga resulta ng proyektong ito sundin ang link.

Mga Resulta

Maligayang pagdating

Maligayang pagdating sa website ng Congenital Heart Alliance ng Australia at New Zealand (CHAANZ).

Ang CHAANZ ay isang consortium ng mga congenital heart disease researcher mula sa Australia at New Zealand. Ang kanilang hangarin ay upang mapadali ang nakatuon na pagsasaliksik sa katutubo na sakit sa puso, itaguyod ang pangangailangan para sa higit na mapagkukunan at tumulong sa mga serbisyo para sa lahat ng mga taong may sakit sa puso.

In the News

The ANZ CHD Registry was recently featured on Channel 9 News. Professor David Celermajer AO, has led the development of the ANZ CHD Registry and Clarissa Pitisikas, Head of Donor Services at HRI and one of Professor Celermajer's patients, spoke to 9News Health Reporter Gabriela Rogers.

Pag-aaral sa buong Australya ng mga kinalabasan at pasanin ng congenital heart disease sa buong kurso sa buhay

Noong Hulyo 2020, iginawad ang pondo sa CHAANZ mula sa Medical Research Future Fund Grants para sa Congenital Heart Disease. Nilalayon ng proyektong ito na maunawaan ang mga pasanin at kahihinatnan ng sakit sa puso sa pagkabuo.

Magbasa Nang Higit Pa

Aotearoa New Zealand

The Paediatric and Congenital Cardiac Service based at Starship/Auckland City Hospitals is very pleased to contribute to the CHAANZ Registry collaboration and grateful for the support and endorsement of Heart Kids New Zealand for this project.

At this time, it is only possible to enrol and contribute data from patients from Aotearoa New Zealand who have received inpatient or outpatient care in Te Toka Tumai Auckland (Starship, Greenlane and Auckland Hospitals).

Patient Engagement Study Interviews and focus groups are underway to consult patients on how they feel about their care, key challenges they face, and suggestions for care plan improvements. The purpose of these discussions will be to understand the participants’ impressions of the proposed care plan for transition from paediatric to adult CHD care and ongoing CHD care.	ANZ Congenital Heart Disease Registry The National Congenital Heart Disease survey is the first step towards addressing current research questions and developing solutions to help all patients with congenital heart disease, irrespective of where they sit on the disease continuum.	Outcomes & Burdens for CHD In addition to providing increased resources for the development of the ANZ Congenital Heart Disease Registry, the MRFF funding will also allow CHAANZ to expand its research in to the burdens and outcomes of congenital heart disease. Recruitment is now complete.	National CHD Survey The National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease.
Developing the ANZ CHD Registry Developing and optimising the ANZ CHD Registry has been an involved process. Read about some of our published work here.	Our Research A call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper.

Pambansang Survey sa Sakit sa Sakit sa Bata

Maligayang pagdating

In the News

Pag-aaral sa buong Australya ng mga kinalabasan at pasanin ng congenital heart disease sa buong kurso sa buhay

Aotearoa New Zealand

Ang aming pagsasaliksik

Patient Engagement Study

ANZ Congenital Heart Disease Registry

The National Congenital Heart Disease survey is the first step towards addressing current research questions and developing solutions to help all patients with congenital heart disease, irrespective of where they sit on the disease continuum.

Outcomes & Burdens for CHD

In addition to providing increased resources for the development of the ANZ Congenital Heart Disease Registry, the MRFF funding will also allow CHAANZ to expand its research in to the burdens and outcomes of congenital heart disease. Recruitment is now complete.

National CHD Survey

The National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease.

Developing the ANZ CHD Registry

Developing and optimising the ANZ CHD Registry has been an involved process. Read about some of our published work here.

Our Research

A call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper.