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Pambansang Survey sa Sakit sa Sakit sa Bata

Ang survey ay sarado na at ang mga resulta ay nai-publish sa Heart Lung Circulation. Para sa karagdagang impormasyon sa mga resulta ng proyektong ito sundin ang link.

Mga Resulta

Maligayang pagdating

Maligayang pagdating sa website ng Congenital Heart Alliance ng Australia at New Zealand (CHAANZ).

Ang CHAANZ ay isang consortium ng mga congenital heart disease researcher mula sa Australia at New Zealand. Ang kanilang hangarin ay upang mapadali ang nakatuon na pagsasaliksik sa katutubo na sakit sa puso, itaguyod ang pangangailangan para sa higit na mapagkukunan at tumulong sa mga serbisyo para sa lahat ng mga taong may sakit sa puso.

In the News

The ANZ CHD Registry was recently featured on Channel 9 News. Professor David Celermajer AO, has led the development of the ANZ CHD Registry and Clarissa Pitisikas, Head of Donor Services at HRI and one of Professor Celermajer's patients, spoke to 9News Health Reporter Gabriela Rogers.

Pag-aaral sa buong Australya ng mga kinalabasan at pasanin ng congenital heart disease sa buong kurso sa buhay

Noong Hulyo 2020, iginawad ang pondo sa CHAANZ mula sa Medical Research Future Fund Grants para sa Congenital Heart Disease. Nilalayon ng proyektong ito na maunawaan ang mga pasanin at kahihinatnan ng sakit sa puso sa pagkabuo.

Magbasa Nang Higit Pa

Aotearoa New Zealand

The Paediatric and Congenital Cardiac Service based at Starship/Auckland City Hospitals is very pleased to contribute to the CHAANZ Registry collaboration and grateful for the support and endorsement of Heart Kids New Zealand for this project.

At this time, it is only possible to enrol and contribute data from patients from Aotearoa New Zealand who have received inpatient or outpatient care in Te Toka Tumai Auckland (Starship, Greenlane and Auckland Hospitals).

Consumer Consultation Interviews and focus groups were completed as part of a patient engagement survey, to consult patients on how they feel about their care, key challenges they face, and suggestions for care plan improvements. Click here to see early findings from this study.	ANZ Congenital Heart Disease Registry The CHAANZ CHD Registry is a comprehensive, long-term database that collects information on people living with congenital heart disease across Australia and New Zealand. It's goal is to support better clinical care, guide research, and help shape health policy to improve the lives of individuals with CHD.	Outcomes & Burdens for CHD This project aims to create a focused profile of 2,400 congenital heart disease patients and 1,200 carers to better describe the outcomes, experiences and burden of CHD across the life-course to generate better evidence for optimisation of “whole of life” care for these subjects. Recruitment is now complete.	Developing the ANZ CHD Registry Developing and optimising the ANZ CHD Registry has been an involved process. Read about some of our published work here.
National CHD Survey The National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease. Read more here.	Our Research A call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper.

Pambansang Survey sa Sakit sa Sakit sa Bata

Maligayang pagdating

In the News

Pag-aaral sa buong Australya ng mga kinalabasan at pasanin ng congenital heart disease sa buong kurso sa buhay

Aotearoa New Zealand

Ang aming pagsasaliksik

Consumer Consultation

Interviews and focus groups were completed as part of a patient engagement survey, to consult patients on how they feel about their care, key challenges they face, and suggestions for care plan improvements. Click here to see early findings from this study.

ANZ Congenital Heart Disease Registry

Outcomes & Burdens for CHD

Developing the ANZ CHD Registry

Developing and optimising the ANZ CHD Registry has been an involved process. Read about some of our published work here.

National CHD Survey

The National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease. Read more here.

Our Research

A call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper.