歡迎
歡迎訪問澳大利亞和新西蘭先天性心臟聯盟 (CHAANZ) 的網站。
CHAANZ 是一個由來自澳大利亞和新西蘭的先天性心髒病研究人員組成的聯盟。他們的目的是促進先天性心髒病的重點研究，促進對更多資源的需求，並協助為所有先天性心髒病患者提供服務。
In the News
The ANZ CHD Registry was recently featured on Channel 9 News. Professor David Celermajer AO, has led the development of the ANZ CHD Registry and Clarissa Pitisikas, Head of Donor Services at HRI and one of Professor Celermajer's patients, spoke to 9News Health Reporter Gabriela Rogers.
澳大利亞範圍內對先天性心髒病在整個生命過程中的結果和負擔的研究
2020 年 7 月，先天性心髒病醫學研究未來基金撥款授予 CHAANZ。該項目旨在了解先天性心髒病的負擔和結果。
Aotearoa New Zealand
The Paediatric and Congenital Cardiac Service based at Starship/Auckland City Hospitals is very pleased to contribute to the CHAANZ Registry collaboration and grateful for the support and endorsement of Heart Kids New Zealand for this project.
At this time, it is only possible to enrol and contribute data from patients from Aotearoa New Zealand who have received inpatient or outpatient care in Te Toka Tumai Auckland (Starship, Greenlane and Auckland Hospitals).
我們的研究
 Consumer ConsultationInterviews and focus groups were completed as part of a patient engagement survey, to consult patients on how they feel about their care, key challenges they face, and suggestions for care plan improvements. Click here to see early findings from this study. |  ANZ Congenital Heart Disease RegistryThe CHAANZ CHD Registry is a comprehensive, long-term database that collects information on people living with congenital heart disease across Australia and New Zealand. It's goal is to support better clinical care, guide research, and help shape health policy to improve the lives of individuals with CHD. |  Outcomes & Burdens for CHDThis project aims to create a focused profile of 2,400 congenital heart disease patients and 1,200 carers to better describe the outcomes, experiences and burden of CHD across the life-course to generate better evidence for optimisation of “whole of life” care for these subjects. Recruitment is now complete. |  Developing the ANZ CHD RegistryDeveloping and optimising the ANZ CHD Registry has been an involved process. Read about some of our published work here. |
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 National CHD SurveyThe National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease. Read more here. |  Our ResearchA call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper. |