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राष्ट्रीय जन्मजात हृदय रोग सर्वेक्षण

सर्वेक्षण अब बंद हो गया है और परिणाम हार्ट लंग सर्कुलेशन में प्रकाशित किए गए हैं। इस परियोजना के परिणामों के बारे में अधिक जानकारी के लिए लिंक का अनुसरण करें।

परिणाम

स्वागत

कॉन्जेनिटल हार्ट अलायंस ऑफ़ ऑस्ट्रेलिया एंड न्यूज़ीलैंड (CHAANZ) की वेबसाइट पर आपका स्वागत है।

CHAANZ ऑस्ट्रेलिया और न्यूजीलैंड के जन्मजात हृदय रोग शोधकर्ताओं का एक संघ है। उनका उद्देश्य जन्मजात हृदय रोग में केंद्रित अनुसंधान को सुविधाजनक बनाना, अधिक संसाधनों की आवश्यकता को बढ़ावा देना और जन्मजात हृदय रोग वाले सभी लोगों के लिए सेवाओं में सहायता करना है।

In the News

The ANZ CHD Registry was recently featured on Channel 9 News. Professor David Celermajer AO, has led the development of the ANZ CHD Registry and Clarissa Pitisikas, Head of Donor Services at HRI and one of Professor Celermajer's patients, spoke to 9News Health Reporter Gabriela Rogers.

पूरे जीवन में जन्मजात हृदय रोग के परिणामों और बोझ का ऑस्ट्रेलियाई व्यापक अध्ययन

जुलाई 2020 में, जन्मजात हृदय रोग के लिए मेडिकल रिसर्च फ्यूचर फंड ग्रांट्स से CHAANZ को फंडिंग प्रदान की गई। इस परियोजना का उद्देश्य जन्मजात हृदय रोग के बोझ और परिणामों को समझना है।

अधिक पढ़ें

Aotearoa New Zealand

The Paediatric and Congenital Cardiac Service based at Starship/Auckland City Hospitals is very pleased to contribute to the CHAANZ Registry collaboration and grateful for the support and endorsement of Heart Kids New Zealand for this project.

At this time, it is only possible to enrol and contribute data from patients from Aotearoa New Zealand who have received inpatient or outpatient care in Te Toka Tumai Auckland (Starship, Greenlane and Auckland Hospitals).

Consumer Consultation Interviews and focus groups were completed as part of a patient engagement survey, to consult patients on how they feel about their care, key challenges they face, and suggestions for care plan improvements. Click here to see early findings from this study.	ANZ Congenital Heart Disease Registry The CHAANZ CHD Registry is a comprehensive, long-term database that collects information on people living with congenital heart disease across Australia and New Zealand. It's goal is to support better clinical care, guide research, and help shape health policy to improve the lives of individuals with CHD.	Outcomes & Burdens for CHD This project aims to create a focused profile of 2,400 congenital heart disease patients and 1,200 carers to better describe the outcomes, experiences and burden of CHD across the life-course to generate better evidence for optimisation of “whole of life” care for these subjects. Recruitment is now complete.	Developing the ANZ CHD Registry Developing and optimising the ANZ CHD Registry has been an involved process. Read about some of our published work here.
National CHD Survey The National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease. Read more here.	Our Research A call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper.

राष्ट्रीय जन्मजात हृदय रोग सर्वेक्षण

स्वागत

In the News

पूरे जीवन में जन्मजात हृदय रोग के परिणामों और बोझ का ऑस्ट्रेलियाई व्यापक अध्ययन

Aotearoa New Zealand

हमारा शोध

Consumer Consultation

Interviews and focus groups were completed as part of a patient engagement survey, to consult patients on how they feel about their care, key challenges they face, and suggestions for care plan improvements. Click here to see early findings from this study.

ANZ Congenital Heart Disease Registry

Outcomes & Burdens for CHD

Developing the ANZ CHD Registry

Developing and optimising the ANZ CHD Registry has been an involved process. Read about some of our published work here.

National CHD Survey

The National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease. Read more here.

Our Research

A call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper.