Accoglienza
Benvenuti nel sito web della Congenital Heart Alliance of Australia and New Zealand (CHAANZ).
CHAANZ è un consorzio di ricercatori sulle malattie cardiache congenite provenienti da Australia e Nuova Zelanda. Il loro scopo è facilitare la ricerca mirata nelle cardiopatie congenite, promuovere la necessità di maggiori risorse e assistere con servizi per tutte le persone con cardiopatie congenite.
Studio australiano sugli esiti e sul peso delle cardiopatie congenite nel corso della vita
Nel luglio 2020, il finanziamento è stato assegnato a CHAANZ dal Medical Research Future Fund Grants for Congenital Heart Disease. Questo progetto mira a comprendere gli oneri e gli esiti delle cardiopatie congenite.
Aotearoa New Zealand
The Paediatric and Congenital Cardiac Service based at Starship/Auckland City Hospitals is very pleased to contribute to the CHAANZ Registry collaboration and grateful for the support and endorsement of Heart Kids New Zealand for this project.
At this time, it is only possible to enrol and contribute data from patients from Aotearoa New Zealand who have received inpatient or outpatient care in Te Toka Tumai Auckland (Starship, Greenlane and Auckland Hospitals).
La nostra ricerca
 Survey ResultsThe National Congenital Heart Disease survey is now closed and the results have been published in Heart Lung Circulation. Thank you to everyone who participated in this important study. You can read more about the results here. |  ANZ Congenital Heart Disease RegistryThe National Congenital Heart Disease survey is the first step towards addressing current research questions and developing solutions to help all patients with congenital heart disease, irrespective of where they sit on the disease continuum. |  Outcomes & Burdens for CHDIn addition to providing increased resources for the development of the ANZ Congenital Heart Disease Registry, the MRFF funding will also allow CHAANZ to expand its research in to the burdens and outcomes of congenital heart disease. |  National CHD SurveyThe National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease. |
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 ANZ Epidemiology ResearchEpidemiology research in congenital heart disease is currently underway in New Zealand and Queensland. Both studies are investigating the burden of disease in each region. More information on these studies can be found here. |  Our ResearchA call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper. |