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Indagine nazionale sulle malattie cardiache congenite

Il sondaggio è ora chiuso e i risultati sono stati pubblicati su Heart Lung Circulation. Per maggiori informazioni sui risultati di questo progetto segui il link.

Accoglienza

Benvenuti nel sito web della Congenital Heart Alliance of Australia and New Zealand (CHAANZ).

CHAANZ è un consorzio di ricercatori sulle malattie cardiache congenite provenienti da Australia e Nuova Zelanda. Il loro scopo è facilitare la ricerca mirata nelle cardiopatie congenite, promuovere la necessità di maggiori risorse e assistere con servizi per tutte le persone con cardiopatie congenite.

Studio australiano sugli esiti e sul peso delle cardiopatie congenite nel corso della vita

Nel luglio 2020, il finanziamento è stato assegnato a CHAANZ dal Medical Research Future Fund Grants for Congenital Heart Disease. Questo progetto mira a comprendere gli oneri e gli esiti delle cardiopatie congenite.

DataCamp Donates x HeartKids Australia Partnership

HeartKids Australia has entered a partnership with DataCamp Donates, an initiative providing free data science training to members of disadvantaged communities, students, and non-profit research scientists. The CHAANZ team is using this opportunity to upskill, taking courses in data science, including artificial intelligence, machine learning, statistics, and programming.

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La nostra ricerca

Survey Results

Survey Results

The National Congenital Heart Disease survey is now closed and the results have been published in Heart Lung Circulation. Thank you to everyone who participated in this important study. You can read more about the results here.

ANZ Congenital Heart Disease Registry

ANZ Congenital Heart Disease Registry

The National Congenital Heart Disease survey is the first step towards addressing current research questions and developing solutions to help all patients with congenital heart disease, irrespective of where they sit on the disease continuum.

Outcomes & Burdens for CHD

Outcomes & Burdens for CHD

In addition to providing increased resources for the development of the ANZ Congenital Heart Disease Registry, the MRFF funding will also allow CHAANZ to expand its research in to the burdens and outcomes of congenital heart disease.

National CHD Survey

National CHD Survey

The National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease.

ANZ Epidemiology Research

ANZ Epidemiology Research

Epidemiology research in congenital heart disease is currently underway in New Zealand and Queensland. Both studies are investigating the burden of disease in each region. More information on these studies can be found here.

Our Research

Our Research

A call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper.

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