Accoglienza
Benvenuti nel sito web della Congenital Heart Alliance of Australia and New Zealand (CHAANZ).
CHAANZ è un consorzio di ricercatori sulle malattie cardiache congenite provenienti da Australia e Nuova Zelanda. Il loro scopo è facilitare la ricerca mirata nelle cardiopatie congenite, promuovere la necessità di maggiori risorse e assistere con servizi per tutte le persone con cardiopatie congenite.
In the News
The ANZ CHD Registry was recently featured on Channel 9 News. Professor David Celermajer AO, has led the development of the ANZ CHD Registry and Clarissa Pitisikas, Head of Donor Services at HRI and one of Professor Celermajer's patients, spoke to 9News Health Reporter Gabriela Rogers.
Studio australiano sugli esiti e sul peso delle cardiopatie congenite nel corso della vita
Nel luglio 2020, il finanziamento è stato assegnato a CHAANZ dal Medical Research Future Fund Grants for Congenital Heart Disease. Questo progetto mira a comprendere gli oneri e gli esiti delle cardiopatie congenite.
Aotearoa New Zealand
The Paediatric and Congenital Cardiac Service based at Starship/Auckland City Hospitals is very pleased to contribute to the CHAANZ Registry collaboration and grateful for the support and endorsement of Heart Kids New Zealand for this project.
At this time, it is only possible to enrol and contribute data from patients from Aotearoa New Zealand who have received inpatient or outpatient care in Te Toka Tumai Auckland (Starship, Greenlane and Auckland Hospitals).
La nostra ricerca
 Consumer ConsultationInterviews and focus groups were completed as part of a patient engagement survey, to consult patients on how they feel about their care, key challenges they face, and suggestions for care plan improvements. Click here to see early findings from this study. |  ANZ Congenital Heart Disease RegistryThe CHAANZ CHD Registry is a comprehensive, long-term database that collects information on people living with congenital heart disease across Australia and New Zealand. It's goal is to support better clinical care, guide research, and help shape health policy to improve the lives of individuals with CHD. |  Outcomes & Burdens for CHDThis project aims to create a focused profile of 2,400 congenital heart disease patients and 1,200 carers to better describe the outcomes, experiences and burden of CHD across the life-course to generate better evidence for optimisation of “whole of life” care for these subjects. Recruitment is now complete. |  Developing the ANZ CHD RegistryDeveloping and optimising the ANZ CHD Registry has been an involved process. Read about some of our published work here. |
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 National CHD SurveyThe National Congenital Heart Disease Online Survey was a voluntary online survey to help understand experiences and needs of people with congenital heart disease. Read more here. |  Our ResearchA call for a National Congenital Heart Disease Registry was advised after an extensive review of CHD management across Australia, published in the HeartKids Australia White paper. |